Cystic Fibrosis
2 weeks ago my son was diagnosed with Cystic Fibrosis. It was devastating. The 2 week window after the heel-prick blood test results had passed, so I was feeling happy we had 'no news was good news' when the health visitor called up and requested my husband and I be around in the morning as people from the lab wanted to talk to us. "they prefer to speak to both parents". I kind of knew there was going to be unexpected news. The health visitor and a nurse arrived at our flat, sat us down and quickly told us that he had high levels of something from the heel prick test and wanted us to come in and talk to the doctors. It felt like a concrete slab had been whacked in our faces and we were both distraught both during their visit and after. They had made us an appointment and a few hours later we went off to the Royal Marsden Hospital for Henry to have a sweat test done to definitely confirm he had the illness. Now they said don't Google but of course I did, I li...
Comments
Post a Comment