Despite what you think NO-ONE moves out of your way, they actually barge their bags and person into you and push themselves first all the time. A priest, an actual priest, dog-collar and all, pushed past me on the street the other day. Need I say more. Women are the worst for not moving - there was 1 seat free on the tube, no-one else on the platform, she clocked I was pregnant and actually pushed herself on first and sat down. Kindly a man did give his seat for me opposite her so I gave her death stares for the whole journey. I don't know why women are the worst but I feel that they just look at me and go well it was your choice to be pregnant or they have never been pregnant and don't understand. Where are the discounts? Surely its logical to think that as we are far more exhausted and can't walk half as far as usual that they would give you a discounted rate on buses and tubes. I walk everywhere mainly to save money and I have been unable to walk down the street wit...
How are you coping with isolation? How are you coping with the threat of illness? How are you coping as a single-parent. My son is 'very high risk' due to Cystic Fibrosis and I have found it challenging to narrow down what this means to us while also nervous to write honestly about this time. Initially I was in blind panic mode. Nobody seemed to be taking this seriously, some children were taken out of school, others weren't, stockpiling was happening, antibac wipes/gel/spray prices skyrocketed, marathons were going ahead while others were closed down. I decided early on to take my son out of school a week before they closed. His condition means his lungs would be seriously affected by any respiratory infection, but the advice from the NHS was to bring him into clinic and continue life as usual. Instead, I kept us at home. I had to work from home. I worked from 5am-7am while he had breakfast and played, we spent the day inside with a trip out for exercise and to get fo...
On Tuesday I travelled to Birmingham for the first time for the Cystic Fibrosis Conference. Run by the CF Trust, I attended the second day aimed at family and friends to learn more about CF and meet some people. (They did a live stream on Facebook if anyone wants to catch up) It was a really interesting morning and a mix of families, doctors, physios attended. Doctors talked about a wide variety of drugs on the market that are in the pipeline for 508D and other CF genotypes. The Doctors all sounded really positive about the research being done even if it does seem slow and there are set backs. You can ask your hospital for remote access instead of/ as well as Clinics. This appealed to me as I live over an hour away from hospital so being able to have an oxygen monitor and other technology might be beneficial. It would also be great to monitor Henry's levels in relation to pollution or pollen levels and see how badly his lungs are affected. But they did stress the imp...
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