Feeling Angry

8.15pm

I feel incredibly angry. I got a call from Henry's nurse this afternoon that his cough swab from last Friday revealed he had grown Enterobacter and needs to now go onto Ciprofloxacin. I was told that they had faxed it to my GP and I could collect and give it to him starting tomorrow and for 4 weeks, although the nurse then said that's unusual as its normally 2 so I really have no idea how long for.
She mentioned that he needs to be away from sunshine or wear factor 50 as ciprofloxacin can make skin photosensitive.

Now i'm really angry as he had previously been given this 3 months ago and I was never told this information. Also she said that this infection is related to the gut and its possible that he doesn't have a lung infection and that he may have acid reflux which went on the cough swab but just to be sure you better give him the antibiotics. The fact that they don't know for certain or haven't asked us in for another cough swab to determine just staggers me. Surely it would be better not to put him on even more harmful antibiotics until you are certain that he has this bug in his lungs at all.

And from reading up this evening it turns out that there are a whole other set of side effects of this medicine and that just 20mins sunshine could give him sun poisoning.

Only yesterday I had a dreadful day filled with tears and anger at being constantly talked down to by 2 pharmacists from Boots and 2 receptionist from my doctor's surgery as I couldn't get more Flucloxicillin. Eventually by 4pm I managed thanks to calling the hospital who advised to ignore the GP and just try and get any fluclox and give him the amount prescribed by the hospital. This constant back and forward between hospital/GP/Boots Pharmacy is exhausting.

Here's hoping that it was indeed faxed over to the GP and that they bothered to look at it and send it to the pharmacy for collection.

Needless to say due to yesterday's treatment I phoned up a private practise to enrol Henry so I won't have to go through this in the future.

I just feel so angry that he has to be on this type of hard and harmful medicine at just 5 months old which can affect so many other parts of his body which no-one, not doctors, not nurses, not his dietician has actually deigned to reveal to us.

x

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