How are you coping with isolation? How are you coping with the threat of illness? How are you coping as a single-parent. My son is 'very high risk' due to Cystic Fibrosis and I have found it challenging to narrow down what this means to us while also nervous to write honestly about this time. Initially I was in blind panic mode. Nobody seemed to be taking this seriously, some children were taken out of school, others weren't, stockpiling was happening, antibac wipes/gel/spray prices skyrocketed, marathons were going ahead while others were closed down. I decided early on to take my son out of school a week before they closed. His condition means his lungs would be seriously affected by any respiratory infection, but the advice from the NHS was to bring him into clinic and continue life as usual. Instead, I kept us at home. I had to work from home. I worked from 5am-7am while he had breakfast and played, we spent the day inside with a trip out for exercise and to get fo...
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Our resilience and strength as single parents can never be taken away
Very exciting moment for me, my writing piece for the wonderful single parent's charity Gingerbread, was published on their blog as part of National Storytelling Week. I am so proud of raising Henry alone as a single parent since he was 10 months old. We have had many highs and lows and I never forget what is important, his health and our happiness. Find the copy below and i'd love to know any comments or thoughts: Emily is a single mother to a nearly three-year-old son, Henry, who has cystic fibrosis. In 2017, they moved from London to Cornwall. Here, she writes about how freeing it has been for her to become a single parent. Becoming a single parent almost two years ago has been a defining moment in my life. This time of year can be very hard for me. It’s when I realised that life in our new flat was no different, the same empty words and behaviours unchanged, and that I was as alone as ever. I lay in bed frequently in tears from confusion, isolation and pur...
Antibiotics Yet Again...
And just as I was feeling better, getting rest, enjoying abit of routine..the hospital call to say Henry has grown a virus in his lungs and has to be on antibiotics for 2 weeks. 2 weeks you may question...not such a big deal ... But it is. It means having to physically hold down Henry while trying to get the syringe in his mouth. It means that in the morning I have to now do his breakfast, give him 3 vitamins from 3 different syringes, get him dressed, brush his teeth, help him go to the toilet a few times, get his nebuliser ready, keep him still to do his nebuliser, clean his nebuliser immediately, then fit in him screaming and being physical to me while I hold him down for antibiotics.....and then get him to nursery for 8am. And some parents struggle just getting their child dressed every morning....! Enjoy that every morning for 2 weeks. Morning and Afternoon. And with another nebuliser in the evening and pep masks and other physio. Where is the time for him and me to actually...
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